Expanding our circle to end DIPG DMG
DIPG OneLink is continually expanding our circle, in an effort to move research forward and give hope where it can seem impossible to find - regardless of where you are in this journey. At its core, DIPG OneLink is a centralized hub of up-to-date information accessible by families, doctors and researchers, lighting the path for all who are invested in this cause.
New To The Fight
What is Diffuse Intrinsic Pontine Glioma?
What Is Diffuse Midline Glioma?
What is H3K27M?
What is a clinical trial - and should we try to get into one?
Overwhelmed by DIPG DMG? You've come to the right place.
In The Fight
You've faced the initial weeks after diagnosis, grasped DIPG DMG's concept, and learned about the H3K27 mutation. Now, let's plan your next moves. Whether seeking tumor board opinions, exploring clinical trials, connecting with other families, or considering data sharing, we're here to assist you every step of the way.
Fighting For Others
As the search for a cure goes on, you have numerous ways to honor your loved one's memory. Connecting with families who share your journey is invaluable, and there are endless avenues to make that connection. From events and retreats to support groups, DIPG DMG families have a range of opportunities to come together.
My DIPG Navigator
Connect with nurses with years of experience in pediatric oncology to help you better understand the diagnosis and treatment options, connect you to the proper resources you need, and support you throughout your fight.
DIPG DMG National Brain Tumor Board
Receive a second opinion for treatment unique to your tumor from a national panel of leading pediatric neuro-oncologists, neuroradiologists, genomics experts, and neurosurgeons selected from centers of excellence across the country.
Tough2gether Online Community
During your fight, you may want to connect with other families going through this battle, learn what resources other parents found helpful or share those helpful to you. Join a private DIPG DMG community founded by DIPG DMG parents.